TWO milestones today, can you believe it?!
The first is that Isaac spent most of the day in his big boy underwear, and stayed DRY! Potty training an autistic child is, I'm sorry to say, a pain in the ass. It really is. He's at the point where he can usually stay dry between trips to the potty, but the problem is he doesn't listen to his body about when he needs to go. That means it's up to Dan and I to try to figure out when he probably needs to go, then we have to push and threaten him to get upstairs to sit on the toilet. Then he sits for 10 seconds and stands back up and says "all done" when he hasn't done anything, then we have to force him to sit back down until he does go. But he is going pee in the toilet, and today was his very first day going to school in his big boy underwear! I packed a change of clothes in his backpack and talked to one of the teachers about it. When I picked him up from school, he had a Spiderman bouncy ball that he'd earned from their Treasure Box because he stayed dry at school today in his big boy underwear! Mom is so proud! The underwear lasted all the way until late afternoon when the poop came. I swear I hope Isaac is pooping in the toilet soon. We're going to make out a potty schedule for him so he has a visual aid about good times to use the potty, and hope that helps. It's been a long hard process, and unless people understand Isaac's special needs, if we try to share with some people how awesome he's doing on the potty we get totally rude comments like, "He's how old?!" He'll be 6 in June, thank you very much, and we couldn't be more proud of the progress he's been making.
The other huge milestone was Isaac ate a hot dog for dinner tonight. Meat. Something other than PB & J or a pancake. And not just a hot dog, but in the bun. I had some coupons so before going to the store I asked Isaac if he'd like to have hot dogs and he said yes. I asked him if he'd like them plain or in a bun, and he said in a bun. So after school I took him to the store with me and had him help me get the stuff. At dinner time I asked if he'd like his leftover pancake or a hot dog, and he said hot dog! I nuked the dog in the microwave, then sliced it in half lengthwise (since Isaac has always had chewing/swallowing problems, I didn't want him to choke). I put 1/2 the dog on the bun, and diced the other 1/2 up. He didn't want ketchup or mustard or anything, which he never does, he likes everything dry and plain. So he picks up the bun and starts eating, getting through that extra bread length. He gets to the meat part and makes a face as he's chewing the hot dog part, and I'm thinking Oh Great! He doesn't like it! Then he swallowed and continued to eat the entire rest of the hot dog and the bun! WOW! We are slowly, slowwwwwwwly beginning to make progress in expanding the foods that he'll eat. The last time he had a hot dog was when he was probably 2 and cut into itty bitty pieces. After that he liked corndogs, and that became a dietary staple for him until about a year ago when he wouldn't touch them again. And that was the only meat we could get in him. We can hide fruit and fiber in things like pancakes, but you can't mash up meat! It's a tricky balance to find foods that will be tasty to him, and also not offend his sensitivity to textures.
We had ice cream for dessert tonight, and of course Isaac wouldn't touch it. But I guess that's actually a good thing?
Tuesday, April 21, 2009
Dry underwear & hot dogs
Posted by Heather at 8:36 PM 0 comments
Thursday, April 16, 2009
Progress
Today I went to Isaac's Parent-Teacher conference, and it was great as I knew it would be.
Isaac is doing great in the structured classroom. He's initiating more with his peers, but now they're going to be working on how he does it since grabbing a friend's toy and saying "Chase me!" while running away doesn't exactly create the kind of fun friendly response Isaac was seeking.
He's doing GREAT in reading, and he has impressed the teachers that he knows the simple words like ball, girl, boy, play (I think they call those sight words?) They're especially impressed because they haven't been working on that at all, so it's something he's picked up on his own (here's me patting myself on the back). For 1st grade next year they're planning on having him attend the mainstream 1st grade class for reading time (and maybe math?), but the only thing that might hold him back is if the 1st grade teacher can't understand his speech then that would be a problem. But she's planning on shooting for the mainstream reading class next year! He will be just about at peer level in that subject! How awesome is that?!
Soon I want to post videos of before and after of Isaac: before when he was totally nonverbal and using ASL to communicate, and videos of now and how he won't stop talking!
Posted by Heather at 8:17 PM 0 comments
For my LDS friends
You'll understand this:
http://www.peepsofmormon.blogspot.com/
Posted by Heather at 7:44 PM 0 comments
Wednesday, April 15, 2009
How did Eve do it?
All through the night you can hear moaning and grunting coming from our room... It's me, trying to roll over and get comfortable. I've been in so much pain, and I don't know how many times I've wondered how Eve did it.
Did Eve have heartburn? She didn't have Tums.
Did Eve throw up or dry heave every time she brushed her teeth? I'm assuming they cleaned their teeth somehow.
Did Eve have Sciatica that caused pain and numbness down her lower body? She didn't have ice packs.
Did Eve have groin pain, the kind the doctor says is another pinched nerve, but actually feels like someone has taken a wooden baseball bat and stuck it between your legs and beat upwards repeatedly? She didn't have Tylenol.
Last night as we were crawling into bed I told Dan that I wondered how Eve did it, handling it all with no Tylenol or ice packs. His totally male response was, "I think she was so busy helping Adam work the land that it just took her mind off of her pain."
Pause... *Blink Blink*
I admit I had harsh words to say about that. I know he can never understand partly because he's male and partly because he is who he is, but I still couldn't believe those words came out of his mouth.
This is the same guy who knows I have to wash dishes in shifts and ice my back in between because the pain and numbness gets so bad I can barely walk. This is the same guy that I ask to help me get things out of the dryer because bending over creates a horrible pulling with contractions when I stand up again. This is the same guy who knows that after helping with yard work I'm down for the rest of the day and the entire next day with unbelieveable pain. This is the same guy who I have to have help me vacuum the house because it's too difficult for me to work the vacuum and haul it upstairs too. This is the same guy who, knowing all this, figures Eve took her mind off her pain by doing manual labor?!
I'm glad we weren't Adam and Eve.
Posted by Heather at 12:50 PM 0 comments
Tuesday, April 14, 2009
A crazy busy Easter weekend
SATURDAYWe left home early Saturday morning and headed up to Portland. Dan's youngest sister, Shelley, delivered her 2nd son premature on the 3rd, and he was being released Saturday afternoon. Because of timing issues, this was our first chance to drive up to see them and the baby. They were at Emanuel Children's Hospital, baby Landon in the NICU and mom and dad in the Ronald McDonald House since they live in the sticks way out on the coast of Washington. So up we went!
We wanted Isaac to see the temple where we were married, so we stopped on our way through. As we were pulling in I asked Dan if he thought we'd see any brides and grooms and we could show them the consequences of what happens when you get married. He didn't think that was too funny. I was surprised this picture didn't really capture the trees in bloom.
Since it was 9am and freezing cold, there weren't any wedding parties out yet. We took advantage of the near empty grounds and took lots of pictures.
We hit the road again and met Shelley and Andrew at the Ronald McDonald House. Isaac brought his Easter basket since we heard they were having an egg hunt put on by the Girl Scouts, even though I didn't think we'd make it there in time. We did!
Isaac was off like a bullet as soon as the egg hunt began! He quickly filled up his ducky Easter basket...
Filled up the blue Easter bucket he was given, and finally had to start filling up a plastic garbage bag! There were so many eggs!!!
After all the loot had been found, all the kids and Girl Scouts posed for a picture.Back inside the House, Isaac was thrilled to start going through his eggs and seeing what candy and toys were inside.
Isaac lovedlovedlovedloved this dinousaur toy! You push buttons on the back of his head and he moves and roars! He's really into the Land Before Time videos right now, and he just thought it was so cool that they had a Cera there for him to play with!
Here's their dining room area... Pretty cool, huh? That train actually goes around the room and makes soft choo-chooing noises and ding-dings!
They had food there... And Dan learned an important lesson that you don't ask a 5 year old child to hold your donut for a minute.
Each room at the house has a theme, and Shelley and Andrew's themed room was sports. Dan fell in love.
We were finally able to meet the man of the hour, Mr. Landon Ray Walls. He was darling! And he was a hefty preemie too... He was born 6 weeks early, but weighed 5 lb 13 oz and was 19.5 inches long. When Isaac was born at 39 weeks, he was 6 lb 12 oz and was 19.5 inches long!
After visiting for quite a while, it was time to go. The hospital was having some kind of safety fair, so on our way out Isaac was able to climb in and see the inside of an ambulance (way cool)...
And a real police car! They were letting kids climb in and sit in the driver's seat of the police car, but Isaac didn't want to do it, crazy kid.
We headed south again and went to Dan's parents' house. Isaac was able to have another Easter egg hunt, this time with his baby cousin Andrew, who is Shelley and Andrew's eldest son. Because of the loot he gathered earlier and because two of his other cousins were going to be egg hunting later that day, we only let him keep about 5 eggs.
Finally home! Isaac dumped out all the eggs and stuffed animals he got on his egg hunts. I counted 67 eggs. Can you believe it?! He seriously made out better this Easter than he normally does on Halloween! Past Easters we've only been able to do one egg hunt, so this was a huge event for him this year.
His favorite egg surprise was one of those bopper-balloons that you blow up HUGE and it has a big rubber band attached to one end. He got three of them! All of his candy, little toys, and stickers filled up his blue Easter bucket almost to the rim.
SUNDAY
Easter Sunday morning Dan had to work super early, so it was just me and Isaac. He got me up at his usual time, 6am on the nose, and we came downstairs to see what the Easter bunny had brought. Earlier we had all been to Target and as we went down the Easter aisles we asked Isaac what things he might like in his basket this year. He picked out this small chocolate bunny and a pack of Easter Play-Doh, so while Isaac wasn't looking Dan grabbed them and purchased them and hid them in the van. So now Isaac thinks the Easter bunny has some magic ability to know what he likes, kind of like Santa. Except the Easter bunny didn't even need a list!
After Dan got off work, we drove down to Springfield to my grandparents' house for Easter dinner. Isaac had his third egg hunt there! This time the eggs were filled with coins so he could add them to his piggy bank to save for the next coolest toy.
When we got home we were able to color eggs. My mom had bought Isaac these cute bug Easter egg kits that come with the dyes and the plastic and sticker bug parts. We colored the eggs Sunday evening, and had to wait until the eggs were dry the next day to put the stickers on...
The stickers didn't work too great, but Isaac still had a great time and he wants to color Easter eggs every day of the year now!
Posted by Heather at 12:37 PM 0 comments
Thursday, April 9, 2009
Poo in the potty!
Isaac went poo in the potty at school!!!!! This is HUGE news when it happens! They have a box they call the Treasure Box, and if Isaac goes poo in the potty at school he can pick out something from the Treasure Box. Today he went poo, and he picked out this Mach 6 toy. He already has one, but he still thought it was super cool since Speed Racer is his thing (he calls me Ma Racer and Dad is Pops Racer). It was funny though because the teacher told me about his achievement before he came out the doors, so I was super excited for him... But the only thing he wanted to talk about was the bunny named Silver that one of the teachers brought to class today and how he got to pet him. He's finishing his Augmentin so there's been a lot of poo lately, but maybe while he's loose he'll get one or two more in the potty here at home. Another highlight of the day was when he told me he had to go pee, then we went upstairs and he actually went pee in the potty instead of in his pull-up! It's been such a slow and painful (and expensive) process, but it's so exciting when he has great days like today!
Posted by Heather at 8:44 PM 0 comments
Wednesday, April 8, 2009
Feeding the baby
It's already turning into an adventure and she isn't even born yet! At first I was sure I was going to bottle feed Brooke because of all the issues I had with trying to nurse Isaac. Then after talking to different people, there's a possibility that because with this pregnancy I can't tolerate soy or most dairy that could mean Brooke will have these allergies. So this is why I've decided to try to nurse her after all.
Posted by Heather at 8:34 PM 0 comments
The garden
I thought great weather would never ever come! I get so antsy to be able to get outside and play in the dirt and start making things grow again. The trouble this year is that being heavily pregnant and feeling pain and stretching in places I never expected, I've had to leave the gardening to Dan. And since gardening is not his thing, he can get pretty grouchy about it.
Posted by Heather at 1:40 PM 0 comments
Monday, April 6, 2009
Replacing fear with FAITH
This weekend was General Conference, and I love General Conference. You know that great feeling if you've ever been hiking in the woods, breathing that clean air, getting that exercise, and the wonderful happy feelings you get from being there? That's how I feel about Conference. It's like good food and exercise for the soul.
We've never had cable, and I mean never (not even basic cable), so we listen to Conference online. Which, I have to say, was the best idea ever, even before sliced bread. Trying to keep a young child quiet and occupied while sitting in a dark chapel for 2 hour stretches at a time while watching Conference at the Stake Center is a long thing of the past. Saturday I was able to crank up the volume on the computer and listen to Conference while Isaac played, fairly quietly, with his toys and other things of fun, and I was able to clean house... I love to multi-task! Plus, listening at home also means I don't have to have the annoying chore of trying to shave my legs for church, which in this late pregnancy results in a lot of huffing and puffing and groaning and ready to sit and take a break by the time the hated chore is done.
My favorite talk was the last one of Saturday morning Conference, and I think it was by President Henry B. Eyring. It was fantastic, and it brought me to tears thinking of how appropriate the topic was for the times we're in now when nearly all of us are faced with trials and fear. I also thought of how much I could have used this talk a long time ago after Isaac's birth and the years of pain and therapy and recovery I had to go through, and how much his talk echoed my thoughts of that time.
Another thing I thought was interesting was the children's Primary songs the choir sang, and also a couple of the talks included quoting some of the lyrics from the Primary songs. I wondered about that, and thought about how the principles of the Gospel are broken down into such extremely simple terms for the Primary children to understand. The Gospel of Jesus Christ is simple, and sometimes it's the simple words that really get through and make a bigger impact over the longer grownup versions.
And last, a repeating topic that appeared was about trials and staying obedient to God's commandments during difficult times. I don't remember who said it (I can't wait for the Conference Ensign to arrive!) but someone mentioned about replacing fear with faith. During these times it's not an easy thing to do, but we were reminded that fear is not an emotion put there by God, but by Satan. We need to replace fear with faith.
I thought of the things I've been fearful of lately, and how I can adjust my thinking. I've been afraid because Dan's hours at work have been cut. I'm grateful because he has a job where many others don't, but we're hurting and it's scary to not make ends meet and be in a position of need. The temp place he signed up for as a 2nd job has only called him once, and he couldn't take the job because it was a graveyard shift and conflicts with his regular job (the man has to sleep sometime!) We've received wonderful help from family, and after we've exhausted alot of our major food storage items (remember all those other Conferences where the Prophets told us to save and prepare for the times when we'll need them?), we've had to ask the church for help. And that's an extremely humbling and uncomfortable place to be, because we want to be able to provide for ourselves. One of the talks mentioned a young couple in a situation similar to ours, and said how this couple had prayed and examined their lives to make sure they were living righteously, and decided to smile and have faith that something would work out. As one of the speakers mentioned, we need to smile instead of moan, and welcome trials as opportunities to grow, and have faith that things will be alright.
My other source of fear has been about Brooke's upcoming arrival and c-section. I've had fears about the surgery. Then I've thought of the 4 years of pain I had after Isaac's natural delivery, having to drive to OHSU to see specialists, going through physical therapy and also receive counseling for the trauma it all caused me, and then I think how a few weeks of suffering from a c-section is so much better than repeating what I went through before. I'm going to have Dan give me a blessing to give me comfort and put my mind at ease, and try to remember that things will be alright.
I am so grateful for the Gospel and the solid foundation it gives me in my life. I can't even imagine going through the trials I've had without that foundation that has kept me from breaking under the weight of those struggles.
Posted by Heather at 12:46 PM 0 comments
Saturday, April 4, 2009
Autism Awareness Month
April is Autism Awareness month, so of course I've gotta add my 2 cents in here.
For a couple of months now I've been receiving that free Babytalk magazine, which I appreciate since I've been out of touch with the whole newborn thing for the last 6 years... but in this issue, there wasn't a single thing in there about autism. I could not believe it! There was one page devoted to milestones and "red flags", but nothing about autism and the signs to watch for. It shocked me, because then I thought about how much everyone knows about SIDS and what they should and shouldn't do to prevent it, but not many people are aware of the signs of autism and it affects so many more children and families than SIDS does!!! Autism affects 1 in 150 children, and among boys that number is even greater. Isaac began showing signs and delays as early as 6 months that eventually led to his diagnosis. No one should wait until their child is in their toddler years to learn the signs of autism and then do something about it. Example: The year we moved here I was out working in the yard and started talking to our new neighbor, and I mentioned how Isaac has autism. She asked me, "What's autism?" *blink blink* Was she serious? Yes, she was, and she's a mother of young children also! I take it for granted that just because I live with this every day doesn't mean the rest of society knows or understands what autism is.
So I'm including a list of my favorite resources, along with the reminder that
1) Autism is NOT caused by vaccines, and
2) Autism is NOT cureable. You can treat the symptoms/delays and it does make life easier, but autism never goes away. It's always, always there. Anyone who claims their autistic child has been "cured" received a misdiagnosis to begin with.
Autism Society of America
http://www.autism-society.org/
Autism Society of Oregon
http://www.oregonautism.com/
Autism Speaks
http://www.autismspeaks.org/
Autism Support Network
http://www.autism-pdd.net/
Autism Oregon
http://autismoregon.org/
Help Autism Now Society (I've met this mom, and she's super neat)
http://www.helpautismnow.com/
A website with world-wide events (by the way, Oregon has one of the highest rates of autism, yet very few autism-related functions are held here... Why is that?)
http://www.worldautismawarenessday.org/site/c.egLMI2ODKpF/b.3917085/k.8FDB/Event_Schedule.htm
And some good resources for Asperger's, which I believe my husband and many members of his immediate family have a mild form of, but are undiagnosed (just one of his siblings has been diagnosed with Asperger's):
Kathy J. Marshack, Ph.D., P.S. website
http://www.kmarshack.com/therapy/asperger/faq.html
Tony Attwood website, leading expert on Asperger's
http://www.tonyattwood.com.au/articles/completeguide.html
And a fantastic book of his:
http://www.tonyattwood.com.au/articles/completeguide.html
And this is not necessarily autism related, but it's about "Ability Awareness" and is touching:
http://www.imtyler.org/
Posted by Heather at 7:56 PM 0 comments
